By Isobel Fry & Lauren Hirst
My main symptom is fatigue – just feeling absolutely exhausted all the time, no matter how much you sleep.
There are other symptoms like eye problems including optic neuritis (inflammation of the optic nerve), some numbness, and unusual sensations in limbs.
It’s difficult knowing there’s no cure.
After I told people about my diagnosis they said things like:
But you don’t look illYou look so wellYou’re too young to have MSI don’t understand – I thought you’d be in a wheelchair?
And so I was inspired to start an Instagram account called But You Don’t Look Ill.
When I was first diagnosed I could not find anyone that was young that was talking about having MS.
So I decided to just try and be that person for someone else.
Through sharing my story I realised there were so many other young people in the same boat that were just looking to find others that they could relate to.
Then I decided to start looking into the process of setting up a charity.
At the end of 2022 we got the official registration for MS Together.
We now provide lots of different services to people and we focus on people aged 18 to 35 who are living with MS.